top of page

The Rory
Morrison WMUK Registry


The Rory Morrison WMUK Registry (RMR) is a research project managed by WMUK. It collects data from hospitals and WM patients to help us better understand the disease, improve treatment and care, and one day find a cure.

Patient involvement is key to the RMR’s success. It is only with your information that researchers and clinicians can learn more about living with WM, how treatments affect the body and your quality life, and start to make improvements in care. Find out more about how to get involved.

How does the RMR make a difference?
How do I get involved?
Participating centres
What does the RMR do

What does the RMR do?


The RMR is a data-led research project. Working with centres across the UK, it gathers data from WM patients. The data collected covers the entire patient experience, from diagnosis, through treatment, complications and related conditions like Bing Neel syndrome, peripheral neuropathy and cryoglobulinaemia. This gives researchers unique insight into life with WM.

The RMR collects two types of data:

  • Clinical data: this comes directly from the participating centres

  • Quality of life: this is collected via a questionnaire sent directly to patients at regular intervals. Find out more about the quality of life arm of the RMR.

You can read more about how the RMR fits into the wider research cycle below.

How does RMR make a difference
speech mark
Happy Scientist
speech mark

How does the RMR make a difference?

Researchers analyse the data collected through the RMR, spotting patterns and trends. These can then help us to learn how it affects people, driving changes in care and improvements in treatment.

By publishing the latest findings from the data, we can push WM research – giving scientists the real-world evidence they need to get funding for larger-scale research projects that could develop and test new treatments. Likewise, findings in quality of life data can help clinicians make decisions to improve care and treatment regimens.

The RMR is managed by WMUK. A Research Committee of trustees, clinicians and patients works together with researchers to identify key priorities for the Registry, so we can make the most out of the data and drive the research that has real potential to benefit patients.

How do I get involved

How do I get involved?

If you are under the care of one the participating centres, your clinical data will be automatically included in the RMR. All data is uploaded on our secure online database by local clinicians and data managers, and is anonymised.

If your centre isn’t participating, you can request a referral to one of the listed centres for the purposes of capturing your data. This doesn’t mean you have to transfer all your care to this centre, but clinician will need to transfer the required data to the RMR centre so they can upload it.

You can also talk to your clinician about joining the RMR. If they’re interested in learning more, direct them to email the RMR team for more information:

Centres involved

What centres are involved in the RMR?

The list of participating centres is always growing. Scroll through to check if your centre is listed. If your centre isn’t listed and you want to take part in the RMR, find out how here.


University College London Hospitals

Healthcare Professional

Dr Shirley D’Sa

The Royal Marsden Hospital

Dr Dima El-Sharkawi

King’s College Hospital

Dr Kirsty Cuthill

Bart’s Hospital

Dr Rebecca Auer

Northwick Park Hospital

Dr Agapi Parcharidou

Royal United Hospital

Dr Josephine Crowe

Oxford University Hospitals

Dr Jaimal Kothari

East Kent University Hospitals

Dr Jindriska Lindsay

Royal Bournemouth Hospital

Dr Helen McCarthy

Torbay Hospital

Dr Deborah Turner

University Hospitals Birmingham

Dr Guy Pratt

Christie Hospital

Drs Kim Linton & Richard Chasy

Aintree Hospital

Dr Jeffrey Smith

St James’s University Hospital

Dr Roger Owen

Hammersmith Hospital

Dr Maria Atta

United Lincolnshire Hospitals

Dr Gamal Sidra

Barnet Hospital

Veronica Conteh

University Hospital Plymouth

Nicola Crosbie

North Bristol NHS Trust

Suriya Kirkpatrick

Nevill Hall Hospital

Dr Nilima Parry-Jones

Cardiff and Vale Health Board

Dr Simona Gatto

Quality of life data

What about quality of life data?


The RMR also includes a standalone project called the ‘Health Related Quality of Life (HrQoL) Outcomes Observation Project. This project collects data directly from patients and concentrates on aspects of their life outside of clinical data, like mobility and mental health.

By taking part in the survey, you can ensure your voice is being heard and feel empowered to know you are having a meaningful impact in changing care now and in the future.

The data is collected through regular surveys sent to patients. Any patient – regardless of where they are being treated – can join this study. It’s really easy to get involved; just email the team at

Find out more about PROMs and the difference you can make

Find out more about the Health Related Quality of Life Outcomes Project here.

Woman Having Chemotherapy With Nurse Using Digital Tablet
Who is Rory Morrison?
bottom of page