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Rory Morrison WMUK Registry

The Rory Morrison WMUK Registry (RMR) is a source of world-class data on WM managed by WMUK. It collects data from WM patients and hospitals to help us better understand the disease, increase treatment options and improve patient outcomes. 

Patient involvement is key to the RMR’s success. It is only with your information that researchers and clinicians can learn more about living with WM, how treatments affect the body and your quality of life, and start to make improvements in care. 

WM Healthcare Professionals
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What does the Rory Morrison Registry (RMR) do?


The RMR is a source of world-class WM data. Working with centres across the UK, it gathers data from WM patients. The data collected covers the entire patient experience, from diagnosis, through treatment, complications, and related conditions like Bing Neel syndrome and peripheral neuropathy. This gives researchers unique insight into life with WM.

The RMR collects two types of data:

  • Clinical data: this comes directly from the participating centres

  • Quality of life: this is collected via a questionnaire sent directly to patients at regular intervals. 
    Find out more about the quality of life arm of the RMR.


You can read more about how the RMR fits into the wider research cycle below.

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How does the RMR make a difference?


Researchers analyse the data collected through the RMR, spotting patterns and trends. These can then help us to learn how it affects people, driving changes in care and improvements in treatment.

By publishing the latest findings from the data, we can push WM research – giving scientists the real-world evidence they need to get funding for larger-scale research projects that could develop and test new treatments. Likewise, findings in quality of life data can help clinicians make decisions to improve care and treatment regimens.

The RMR is managed by WMUK. A Research Committee of trustees, clinicians and patients works together with researchers to identify key priorities for the Registry, so we can make the most out of the data and drive the research that has real potential to benefit patients.

Get involved

How do I get involved?


If you are under the care of one of the participating centres, your clinical data will be automatically included in the RMR. All data is uploaded to our secure online database by local clinicians and data managers and is anonymised.

You can also talk to your clinician about joining the RMR. If they’re interested in learning more, direct them to our Registry Manager for more information:

Centres involved

What centres are involved in the RMR?


The list of participating centres is always growing. Scroll through to check if your centre is listed. 


University College London Hospitals

Healthcare Professional

Dr Shirley D’Sa

The Royal Marsden Hospital

Dr Dima El-Sharkawi

King’s College Hospital

Dr Kirsty Cuthill

St Bart’s Hospital

Dr Rebecca Auer

Northwick Park Hospital

Dr Agapi Parcharidou

Royal United Bath Hospital

Dr Josephine Crowe

Oxford University Hospitals

Dr Jaimal Kothari

East Kent University Hospitals

Dr Jindriska Lindsay

Royal Bournemouth Hospital

Dr Helen McCarthy

Addensbrooke's Hospital

Dr Daniel Hodson

Queen Elizabeth Hospital Birmingham

Dr Guy Pratt

The Christie Hospital

Drs Kim Linton & Richard Chasy

The Clatterbridge Centre

Dr Arvinda Arumainath

St James’s University Hospital

Dr Roger Owen

Hammersmith Hospital

Dr Maria Atta

Royal Stoke University Hospital

Dr Neil Phillips

University Hospital Nottingham

Dr Mark Bishton

University Hospital Plymouth

Nicola Crosbie

North Bristol NHS Trust

Suriya Kirkpatrick

Neville Hall Hospital

Dr Nilima Parry-Jones

University Hospital of Wales

Dr Simona Gatto

Quality of life data

What about quality of life data?


The RMR also includes a standalone project called the ‘Health Related Quality of Life (HrQoL) Outcomes Observation Project. This project collects data directly from patients and concentrates on aspects of their life outside of clinical data, like mobility and mental health.

By taking part in the survey, you can ensure your voice is being heard and feel empowered to know you are having a meaningful impact in changing care now and in the future.

The data is collected through regular surveys sent to patients. Any patient – regardless of where they are being treated – can join this study. It’s really easy to get involved; just email the Registry Manager at

Find out more about PROMs and the difference you can make

Find out more about the Health Related Quality of Life Outcomes Project here.

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