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About WMUK

WM

WMUK is the only charity in the UK focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare type of blood cancer.

Our vision is that people affected by WM live longer good quality lives, being supported every step of the way by WMUK.
Our goal is to be the informed voice of WM in the UK.

WMUK
Positioning

Be the expert voice of WM
- the most credible leading-edge source

  • Ensure WMUK is recognised as aspirational through building reputation and influence
     

  • Be a key player in shaping research plans to ensure patient needs are addressed and outcomes are optimised
     

  • Contribute the patient perspective to all relevant decision-making bodies in the UK

Optimised
Treatment

Harness knowledge, data and evidence to drive equitable access and improve patient outcomes

  • Provide robust data to support clinical decision making
     

  • Work with the wider WM ecosystem expertise and systems to improve patient outcomes (research and delivery)
     

  • Deliver the services that will meet the needs of those affected by WM to improve outcomes

Empowered Patients / Engaged Community

Empower patients to live well with WM and support them throughout their WM experience

  • Identify and deliver the support patients need to live fulfilled lives
     

  • Work with the wider WM ecosystem to strengthen patient involvement in research and healthcare delivery
     

  • Educate WM healthcare specialists about patient needs

Sustainable
Funding

Be a financially viable organisation with a strong foundation for achieving our goal

  • Broaden the funding base to avoid over reliance on one sector
     

  • Secure the sustainable resources we need to achieve our plan and secure the future of WMUK

WMUK Board

WMUK Board

Every charity has a Board. A Board is a group of elected individuals who are all responsible for the governance and strategic direction of an organisation. To govern WMUK our Board defines our long term direction, furthering its purposes as set out in our governing document. It also makes sure that WMUK is effectively and properly run with legal and all other obligations met. The Board's utmost duty is to protect WMUK's best interests through decisions made on its behalf. 

Dr Harriet Scorer

Dr Harriet Scorer

​

Harriet was diagnosed with WM over 20 years ago. She is a qualified doctor (gynaecology) and runs her own healthcare consultancy business.

Jane Kidd

Jane Kidd​

​

Jane is a highly experienced leader who has worked in global Pharma companies for 30 years, holding global, regional, and country executive positions in strategic marketing, market access, healthcare solutions and as a managing director. She has operated as an independent Consultant and Non-Executive Director for the past 7 years, working to build board-level strategies that help transform organisations, teams and brands, elevating business performance, and driving growth and transformation.

Charles Lilley

Charles Lilley​

​

This is Charles he is 68, retired lives in Cornwall, keeps bees and rides his motorbikes. He has worked in Health IT for over 40 years. 

Clinica Advisory
Governance Committee
Research Committee

Clinical Advisory
Board Members

The clinical advisory committee's role is to provide advice and knowledge/ support to WMUK. The Clinical Advisory Board ensures WMUK can provide the most up-to-date information and support wherever people are in the UK. They review all our information ensuring it is accurate and up to date, help with questions raised through our support channels and provide talks as part of our series of webinars. 

Dr Dima El-Sharkawi (Chair)

Prof Shirley D’Sa

Dr Roger Owen

Prof Guy Pratt

Dr Helen McCarthy

Dr Jaimal Kothari

Dr Rebecca Auer

Dr Charlampia Kyriakou

Dr Kirsty Cuthill

Dr Michael Lunn

Dr Aisling Carr

​

Research
Committee Members

The research committee's role is to evaluate whether a proposed project is consistent with WMUK's mission, whether the appropriate resources are in place to conduct the research and whether the study outcomes are likely to be useful. They also have a responsibility to develop, implement and monitor the WMUK Research Strategy in accordance with WMUK's strategic plan.

Dr Harriet Scorer ​(Chair)

Karen Facey

​Professor Sam Salek

Dr Dima El-Sharkawi

Dr Roger Owen

Joy Ellery

Jane Nicholson

​
 

Governance Committee Members

The governance committee's role is to ensure compliance with all matters related to the protection and privacy of data. They make the decisions about changing data usage, making data quality improvements and make decisions that require resources to be expended in line with WMUK's strategic objective of achieving world class data on WM. 

Charles Lilley

Dr Peter Walton

Jane Nicholson

Our Team

WMUK Team

Jane Nicholson
Jane Nicholson​
 
CEO
 

An experienced CEO in both the commercial and not for profit sectors, Jane has experience in shaping, driving and leading organisations. Jane joined WMUK in March 2021 and is passionate about improving WM patient outcomes. 

Kat Tucker
Kat Tucker
 
Deputy CEO
​

Kat joined WMUK in 2020. She supports Jane in the smooth running of the charity, whilst leading on the charity's patient information and measuring the impact of the charity's work identifying areas where we can further help patients and families.

Alison McKinney
Alison McKinney​
 
Chief Nursing Officer
 

Alison is a fully qualified RCN and joined WMUK in August 2022 when she set up our Support Line. Now, she is responsible for clinical support and education, including Nurse Study Days as well as bridging the gap between patients and clinicians by raising WM awareness and improving care and outcomes for patients.

Lorena_Silverton_JPG.avif
Lorena Silverton
 
Database and Governance Manager
​

Lorena joined WMUK in 2023. With extensive experience in helping small charities to grow by harnessing the power of data, Lorena helps to ensure the charity runs smoothly behind the scenes. She is the charity's contact for all thing Registry related.

Beth Webster_edited.jpg
Beth Webster
 
Clinical and Community Support Nurse
 

Beth us a fully qualified nurse, with 12 years of experience, with four years working directly in haematology. From this time she gained significant experience working with WM patients, specifically on a haematology day unit and as a Lymphoma Clinical Nurse Specialist. her role also encompasses engaging and supporting the WM community, from connecting patients and loved ones to the right kinds of information and support they need, to how they can also get involved in supporting WMUK.

WMUK_header_strap-blk.jpg

© 2022 WMUK

Registered as a charity in England and Wales (1187121).

WMUK, Foden House, 47 London Road, Alderley Edge, Cheshire, SK9 7JT

Call us on:

0300 303 5870

A company limited by guarantee in England and Wales (12358324).

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